Diabetes Research Matters: A Three-Round Priority-Setting Survey Consultation with Adults Living with Diabetes and Family Members in Australia

Christel Hendrieckx,Sienna Russell-Green,Timothy Skinner, Ashley H. Ng, Chris Lee, Siobhan Barlow, Alan Davey, Caitlin Rogers,Elizabeth Holmes-Truscott,Jane Speight

The Patient - Patient-Centered Outcomes Research(2024)

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摘要
We aimed to identify the health and quality-of-life research priorities of Australians with diabetes or family members. Through an iterative, three-step, online survey process we (1) qualitatively generated research topics (long list) in response to one question “What research is needed to support people with diabetes to live a better life?”; (2) determined the most important research questions (short list); and (3) ranked research questions in order of importance (priorities). We aimed to recruit N = 800 participants, with approximate equal representation of diabetes type and family members. Participants (N = 661) were adults (aged 18+ years) in Australia with a self-reporting diagnosis of diabetes (type 1, n = 302; type 2, n = 204; prior/current gestational, n = 58; less common types, n = 22, or a family member, n = 75). Retention rates for Surveys 2 and 3 were 47
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