Holding Still, Together: Person-Centered Parkinson's Care Portrayed

For decades the relation between healthcare and science has been determined by a reductionist thinking paradigm, in which only what can be counted, really counts. We are still in that paradigm, but new voices are heard that argue we are, in fact, transitioning to a new era in healthcare that is more pluralistic and holistic. The patient movement, and an omnipresent appeal for genuinely person-centered care are the main drivers for this transition. Research methodologies that produce new forms of knowledge required to steer this transition are on the rise. Arts-based inquiry represents one promising direction thereof. Here, we present a combined visual, and narrative panorama for the reader to get close to the process of doing this type of research, in this case involving photographic portraits or Parkinson’s patients and their care professionals. With the use of this innovative approach we hope to shed light on how person-centered care comes about, and may be improved by looking at it from a learning perspective.