Eye-trackers, digital-libraries, and print-referencing: A single case study in CDKL5

•Commercially available technology tracked the visual attention of a child with a severe congenital disability and cortical visual impairment.•The technology was set up by untrained family through the assistance of remote support from researchers.•Remote data collection allowed for the participation of a medically fragile child in a safe and familiar context.•Eye-tracking may be a useful way to passively assess response to emergent literacy interventions for students with severe disabilities including cortical visual impairment.