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The Patient Experience of CHAPLE Disease: Results from Interviews Conducted As Part of a Clinical Trial for an Ultra-Rare Condition

Leighann Litcher-Kelly,Ahmet Ozen,Sarah Ollis,Hagit Baris Feldman,Andrew Yaworsky, Paolo Medrano,Voranush Chongsrisawat,Lorah Perlee,Marisa Walker, Sharanya Pradeep,Diane M. Turner-Bowker,Alina Kurolap,Orly Eshach Adiv,Michael J. Lenardo,Olivier A. Harari,Jessica J. Jalbert

Orphanet Journal of Rare Diseases（2025）

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Key words
CHAPLE,Within-trial interviews,Pozelimab,HRQoL
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