Co-developing The Canadian MPS Registry: A longitudinal rare disease patient registry
John J. Mitchell, Michal Inbar-Feigenberg,Kim Angel,Pranesh Chakraborty,Monica Lamoureux,John Adams,Beth K. Potter, Sylvia Stockler-Ipsirolgu,Alison H. Howie, Alex Pace, Nancy J. Butcher,Cheryl Greenberg, Robin Hayeems,Anne-Marie Laberge, Jeff Round, Martin Offringa,Maryam Oskoui,Chelsea Ruth, Andreas Schulze,Kathy Speechley,Kednapa Thavorn,Yannis Trakadis,Kumanan Wilson, Thierry Lacaze MOLECULAR GENETICS AND METABOLISM（2024）
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