The Impact of Bladder Problems on Well-Being in Multiple Sclerosis - A Cross-Sectional Study

Background Persons with multiple sclerosis (pwMS) frequently suffer bladder problems that are not identified and managed optimally, reducing quality of life and increasing risk of health consequences. Objective This study aimed to investigate associations between bladder problems and well-being of pwMS. Methods The study included 1,872 pwMS from France, Germany, Italy, and the UK self-reporting on demographics, MS status, bladder problems and management, and well-being. Logistic regressions were performed to investigate associations with self-reported well-being. Results Population mean age was 51 years and 79% were women. Among pwMS, 55% reported bladder problems indicating overactive bladder (OAB), and 40% reported self-experienced urinary retention. Self-management of bladder problems was reported by 32%, 33% were yet to have problem resolution, and 45% reported a wish to receive bladder management help. Additionally, 35% of pwMS reported that bladder problem onset preceded awareness of a link to MS. OAB, problem self-management and urinary complications were significantly associated with lower well-being. Conclusion Bladder problems affect pwMS across disease subtypes and many attempt self-management. Consequently, pwMS with bladder problems are more likely to experience lower well-being, suggesting an unmet need. Raising awareness of the link between bladder problems and well-being could benefit pwMS living with bladder problems.