Evaluation of a hybrid telehealth care pathway for patients with axial spondyloarthritis including self-sampling at home: results of a longitudinal proof-of-concept mixed-methods study (TeleSpactive)

Hannah Labinsky,Susann May,Katharina Boy, Sophie von Rohr,Manuel Grahammer,Sebastian Kuhn, Jessica Rojas-Restrepo, Ekaterina Vogt,Martin Heinze,Georg Schett, Felix Muehlensiepen,Johannes Knitza

Rheumatology International(2024)

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摘要
Patients with axial spondyloarthritis (axSpA) require close monitoring to achieve the goal of sustained disease remission. Telehealth can facilitate continuous care while relieving scarce healthcare resources. In a mixed-methods proof-of-concept study, we investigated a hybrid telehealth care axSpA pathway in patients with stable disease over 6 months. Patients used a medical app to document disease activity (BASDAI and PtGA bi-weekly, flare questionnaire weekly). To enable a remote ASDAS-CRP (TELE-ASDAS-CRP), patients used a capillary self-sampling device at home. Monitoring results were discussed and a decision was reached via shared decision-making whether a pre-planned 3-month on-site appointment (T3) was necessary. Ten patients completed the study, and eight patients also completed additional telephone interviews. Questionnaire adherence was high; BASDAI (82.3
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关键词
Axial spondyloarthritis,axSpA,Electronic patient-reported outcome,ePRO,Treat-to-target,Shared decision-making,Surveys and questionnaires
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