Walking the talk for dementia: A unique immersive, embodied, and multi-experiential initiative

Fernando Aguzzoli Peres, Aline Nogueira Haas, Angga Dwi Martha, Melissa Chan, Michelle Steele, Maria Teresa Ferretti, Ntokozo N. Ngcobo, Stefania Ilinca, Clara Dominguez-Vivero,Iracema Leroi,Nisha Sajnani,Eduardo R. Zimmer, Alex Kornhuber, Alexandre Kalache, Berrie Holtzhausen,Catarina Tristao-Pereira,Charless Dupont, Dan Cohen, David de Jong, David Facal, Desmond O'Sullivan, Elaine Mateus, Enzo Roso, Evon Estrop, Giulia Gamba, Gustavo San Martin Elexpe, Hector Ulises Diaz Hernandez, Helena Quaid,Ishtar Govia, Joao Barbosa, Joaquina Garcia del Moral, Johnny Miller, Jose Antonio Garcia Garcia, Kevin Quaid, Laura Navarro, Laura Zuniga Garcia, Laureen Waters, Lebo Molete,Maria Eugenia Godoy, Maureen Sigauke, Max William de Ataide Schulte, Peter Estrop, Priscilla San Martin Elexpe Cardoso, Randall Perez, Rianna Patterson, Ronika Chakrabarti, Ruth Wong,Sara Marsillas, Shontonese Lowe, Taida Sanchez Rego,Temitope Farombi, Theresa Montgomery, Ton In't Veen, Valli Yanni, Wendy Weidner,Agustin Ibanez

ALZHEIMERS & DEMENTIA(2024)

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摘要
Coping with dementia requires an integrated approach encompassing personal, health, research, and community domains. Here we describe "Walking the Talk for Dementia," an immersive initiative aimed at empowering people with dementia, enhancing dementia understanding, and inspiring collaborations. This initiative involved 300 participants from 25 nationalities, including people with dementia, care partners, clinicians, policymakers, researchers, and advocates for a 4-day, 40 km walk through the Camino de Santiago de Compostela, Spain. A 2-day symposium after the journey provided novel transdisciplinary and horizontal structures, deconstructing traditional hierarchies. The innovation of this initiative lies in its ability to merge a physical experience with knowledge exchange for diversifying individuals' understanding of dementia. It showcases the transformative potential of an immersive, embodied, and multi-experiential approach to address the complexities of dementia collaboratively. The initiative offers a scalable model to enhance understanding, decrease stigma, and promote more comprehensive and empathetic dementia care and research.
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关键词
dementia,diversity,experiential and immersive learning,lived experience,patient-family-oriented care,society,transdisciplinarity
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