Letter to the Editor Regarding "validation of a Set of Instruments to Assess Patient- and Caregiver-Oriented Measurements in Spinal Muscular Atrophy: Results of the SMA-TOOL Study".
Neurology and Therapy（2023）
关键词
Disease burden,Outcome measures,Patients and caregivers,Quality of life,Spinal muscular atrophy,Symptom assessment
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