Ensuring the Success of Pediatric Cardiology Patients Through the Lifespan: Translating Current Transition Medicine Research into Programmatic Implementation

Purpose of Review This paper will introduce transition medicine implementation ideas to adapt and incorporate into every major pediatric cardiology center. By examining existing research that demonstrates effective strategies aimed at improving the transition process for young adults with chronic illness, we hope to engage major stakeholders in developing and sustaining transition of care clinics (TOCC). Recent Findings Many barriers exist to implementing a successful transition of care program for pediatric chronic disease populations. The divergent goals of research findings and the nuances of institutional funding priorities serve as a big driver of delay in transition program implementation. Adequate funding streams for research are also limited, with child health outcomes and care throughout the lifespan not gaining sufficient attention. Investment from institutional, local, state, and federal funding as well as increased legislative priorities in child health may help gain more traction in establishing TOCC. Lastly, advocacy surrounding the importance of TOCC and comparative effectiveness data on which transition programs improve outcomes for pediatric chronic disease populations is critical for best care practice, as well as the ability to disseminate data that can be easily translated by and disseminated to institutions and lawmakers. Summary Engaging stakeholders, institutional prioritization, multi-level funding, and research translation are critical to enhancing and improving transition of care outcomes and experiences for pediatric chronic disease patients.