The French Experience with a Population-Based Esophageal Atresia Registry (RENATO)

Rony Sfeir,Madeleine Aumar, Dyuti Sharma,Julien Labreuche, Luc Dauchet,Frederic Gottrand

EUROPEAN JOURNAL OF PEDIATRIC SURGERY(2024)

引用 0|浏览7
暂无评分
摘要
This paper presented a national register for esophageal atresia (EA) started in January 2008. We report our experience about the conception of this database and its coordination. Data management and data quality are also detailed. In 2023, more than 2,500 patients with EA are included. Prevalence of EA in France was calculated at 1.8/10,000 live birth. Main clinical results are listed with scientific publications issued directly from the register.
更多
查看译文
关键词
population-based register,esophageal atresia,rare disease
AI 理解论文
溯源树
样例
生成溯源树,研究论文发展脉络
Chat Paper
正在生成论文摘要