Academic and Private Partnership to Improve Informed Consent Forms Using a Data Driven Approach.

Craig Tendler,Patricia S Hong, Conor Kane,Christa Kopaczynski, William Terry,Ezekiel J Emanuel

The American journal of bioethics : AJOB(2023)

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Click to increase image sizeClick to decrease image size DISCLOSURE STATEMENTTendler C, Kane C, Kopaczynski C, and Terry W are employees of Janssen Research & Development, Pharmaceutical Companies of Johnson & Johnson and own stock in Johnson & Johnson. Emanuel E reports speaker honoraria from The Galien Foundation, WellSky, RightWay, Signature Healthcare Foundation, Healthcare Leaders of NY, Medimpact, Massachusetts Association of Health Plans, Philadelphia Committee on Foreign Relations, Yale University, Hartford Medical Society, AAHC Global Innovation Forum, HMSA & Queens Health System, Advocate Aurora Health Summit, University of Pittsburgh Medical Center (UPMC) Shadyside, University of California San Francisco, Advocate Aurora Health, Cain Brothers Conference, Bowdoin College, The Suntory Foundation, Ontario Hospital Association, University of Oklahoma; visiting professor honorarium from Princeton University; support for attending meetings and/or travel from Hartford Medical Society, AAHC Global Innovation Forum, Macalester College, Oak CEO Summit, Advocate Aurora Health Summit, DPharm Conference, UPMC Shadyside, UCSF San Francisco, Cain Brothers Conference, Bowdoin College, Galien Jerusalem Ethics Forum, HLTH 2022 Las Vegas, HMSA Honolulu, Tel Aviv University, The Suntory Foundation, The Ontario Hospital Association, University of Oklahoma, The Quadrangle Retirement Community, Lazard Global Healthcare Leadership Summit; Participation on the following: Village MD (External Advisory Board), Cellares (Board of Advisors), Notable (Occasional Advisor), HIEx Health Innovation Exchange Partnership (Advisory Board Member), JSL Health Fund (Advisory Board Member), WHO COVID-19 Ethics & Governance Working Group (Expert Advisory Member), Biden's Transition COVID-19 Committee (Advisory Board Member), WHO (Special Advisor Board Member), Peterson Center on Healthcare (Advisory Board Member), Clarify Health (Advisor), FeelBetter (Advisory Board), Link Health Technologies (Advisor); Editorial Board Member of the Journal of the American Medical Association; Stock options for Cellares, Notable, Clarify, Korro, Link Health Technologies; JSL Health Fund (Invested in and no management fees); Oak HC/FT Venture Fund (Invested in fund); Council on Foreign Relations (Member), and Center for American Progress (Senior Fellow). Additional informationFundingThis work was supported by Janssen Research and Development LLC.
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