Activities of Clinical Expertise and Research in a Rare Disease Referral Centre: A Place for Telemedicine beyond the COVID-19 Pandemic?

Quentin Ducrocq,Laurence Guédon-Moreau,David Launay,Louis Terriou,Sandrine Morell-Dubois,Hélène Maillard,Guillaume Lefèvre,Vincent Sobanski,Marc Lambert,Cécile Yelnik,Meryem-Maud Farhat,Maria José Garcia Fernandez,Eric Hachulla,Sébastien Sanges

Healthcare (Basel, Switzerland)（2023）

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摘要

Whereas TLM has become widely used as a back-up procedure to in-person consultations during the COVID-19 pandemic, the solutions it provides to the problems encountered in performing expertise and research activities have made it a new conventional follow-up modality for patients with rare diseases.

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关键词

telemedicine, telehealth, teleconsultation, tele-expertise, tele-trial, rare diseases, auto-immune diseases, referral centre, clinical research, clinical trial

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