P139 Scandinavian cystic fibrosis registry study - comparing care and clinical outcome

Cystic Fibrosis (CF) patient registries can be used to study real life clinical outcomes and between-country differences. The Scandinavian countries, Sweden (S), Denmark (D) and Norway (N), have national registries with high coverage (>90%) and a common set of variables. Despite inequalities in access to CFTR modulators, these CF populations are comparable and can serve as a natural experiment when exploring consequences of variation in treatment. We aimed to compare treatments, modifying factors and key clinical outcome measures of CF disease between Scandinavian countries.