Life expectancy and end-of-life communication in adult patients with congenital heart disease, 40-53 years after surgery.

Chiara Pelosi,Robert M Kauling,Judith A A E Cuypers,Elisabeth M W J Utens,Annemien E van den Bosch,Agnes van der Heide,Jeroen S Legerstee,Jolien W Roos-Hesselink

European heart journal open（2023）

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摘要

Adult patients, especially with moderate/severe CHD, perceived their life expectancy as normal, whereas cardiologists had a more pessimistic view than their patients. Increased attention is warranted for discussions on life expectancy and EOL to improve patient-tailored care.

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关键词

life expectancy,congenital heart disease,adult patients,end-of-life

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