Sustained agreement rates in the longitudinal assessment of lupus patients to a Broad Consent for personal data and specimen usage in the RHINEVIT biobank.

Jutta G Richter,Tim Filla,Hasan Acar,Ellen Bleck,Anna Kernder,Christina Düsing,Stefan Vordenbäumen, Markus Schröder, Ralf Hansen,Jörg H W Distler,Matthias Schneider

Frontiers in medicine（2023）

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摘要

Modifications to the BC did not result in any relevant changes in the approval rates for SLE patients. RHINEVIT's BC is successfully used for the quality-assured handling of excellently annotated biomaterial. The long-term use of these highly valuable biospecimens for unrestricted research, also in an international context, remains assured.

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lupus patients,agreement rates,rhinevit biobank,longitudinal assessment,personal data

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