The US national registry for childhood interstitial and diffuse lung disease: Report of study design and initial enrollment cohort.

Pediatric pulmonology(2023)

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摘要
This Registry is the largest longitudinal chILD cohort in the United States to date, providing a powerful framework for collaborating centers committed to improving the understanding and treatment of these rare disorders.
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关键词
interstitial lung disease, NEHI, rare lung disease
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