Data-driven sudden cardiac arrest research in Europe: Experts' perspectives on ethical challenges and governance strategies.

Marieke A R Bak,Jelle C H Vroonland,Marieke T Blom,Domagoj Damjanovic,Dick L Willems,Hanno L Tan,M Corrette Ploem

Resuscitation plus（2023）

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摘要

Researchers and scientific societies should be aware that ethico-legal issues may arise during data-driven studies in SCA and other emergencies. These can be mitigated by combining technical data protection safeguards with appropriate informed consent policies and proportional ethics oversight. To ensure responsible conduct of data research in emergency medicine, we recommend the establishment of 'codes of conduct' which should be developed in interdisciplinary groups and together with patient representatives.

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关键词

Keywords, Research ethics, Data protection, Observational studies, Big data, Biobank, Genetics, Sudden cardiac arrest, Sudden cardiac, death, Out-of-hospital cardiac arrest, ESCAPE-NET

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