The International Standard Set of Outcome Measures for the Assessment of Hearing in People with Osteogenesis Imperfecta.

Thadé Goderie,Sebastian Hendricks,Chiara Cocchi,I Diane Maroger,Dagmar Mekking,Isabelle Mosnier,Angela Musacchio,David Vernick,Cas Smits

Otology & neurotology : official publication of the American Otological Society, American Neurotology Society [and] European Academy of Otology and Neurotology（2023）

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摘要

This project resulted in a clear consensus statement for standardization of hearing-related PROMs and CROMs and follow-up management of patients with OI. This standardization of outcome measurements will facilitate comparability of research and easier international cooperation in OI and hearing loss. Furthermore, it can improve standard of care in people with OI and hearing loss by incorporating the recommendations into care pathways.

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关键词

Clinician-reported outcome measures, Adult, Assessment, Audiology, Child, CROM, Follow-up, Patient-reported outcome measures, Pediatric, PROM

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