The importance of the patient's perspective in decision-making in multiple sclerosis: Results of the OwnMS patient perspectives study.

Jordanne Florio-Smith, Mavis Ayer, Samantha Colhoun,Nicola Daykin,Brenda Hamill, Xierong Liu,Emma Rogers,Alison Thomson, Roberta Pace Balzan

Multiple sclerosis and related disorders(2023)

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摘要
This UK nationwide survey highlighted some of the unmet needs in disease education and communication in a subgroup of UK patients with RRMS, which can impact quality of life. Discussing goals and planning alongside prognosis and disability progression with MS care teams may enable people with RRMS not only to make informed treatment decisions, but also to self-manage and plan for the future, factors which are important to maintain independence.
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关键词
multiple sclerosis,ownms patient perspectives,decision-making
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