Patients’ and health care providers’ perspectives on quality of hemophilia care in the Netherlands: a questionnaire and interview study

M.R. Brands, L. Haverman, J.J. Muis, M.H.E. Driessens,F.J.M. van der Meer, G. Goedhart, S. Meijer,M. de Jong,J.G. van der Bom,M.H. Cnossen,K. Fijnvandraat,S.C. Gouw

Research and Practice in Thrombosis and Haemostasis（2023）

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摘要

Satisfaction with hemophilia care is high among persons with hemophilia in the Netherlands, although several potential improvements have been identified. Accentuating these is especially relevant in the current era of treatment innovations, in which we might focus less on other aspects of care.

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关键词

health policy,hemophilia A,hemophilia B,patient satisfaction,quality of health care,telemedicine

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