Extended Family Outreach in Hereditary Cancer Using Web-Based Genealogy, Direct-to-Consumer Ancestry Genetics, and Social Media: Mixed Methods Process Evaluation of the ConnectMyVariant Intervention.

Annie T Chen,Jennifer Huey, Sandra Coe,Jailanie Kaganovsky,Emily A Malouf, Heather D Evans,Jill Daker,Elizabeth Harper,Olivia Fordiani, Emma E Lowe,Caileigh McGraw Oldroyd,Ashlyn Price,Kristlynn Roth,Julie Stoddard, Jill N Crandell,Brian H Shirts

JMIR cancer（2023）

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摘要

This study demonstrated that there is an interest in extended family outreach as a mechanism to improve cascade screening for hereditary cancer prevention. Additional research to systematically evaluate the outcomes of such outreach may be challenging but is warranted.

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关键词

BRCA1,BRCA2,Facebook,PALB2,breast cancer,cascade screening,distant relatives,familial cancer,family history,hereditary cancer,partner and localizer of BRCA2,patient advocacy,pedigree building

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