Experiences of parents of children with hypoplastic left heart syndrome during their treatment: a qualitative study.

Agustín Silberberg, Josefina Castro Méndez,Silvio F Torres, Rafael Fraire, Alejandro Siaba Serrate,Christian Kreutzer, Mariana López Daneri,Thomas Iolster

Cardiology in the young（2023）

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摘要

The majority of parents of children with Hypoplastic Left Heart Syndrome would recommend continuing with the therapeutic effort in order to feel at peace and reduce feelings of guilt.

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关键词

Hypoplastic left heart syndrome,comfort care,guilt,parents perception,quality of life

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