A Rapid Review on the Value of Biobanks Containing Genetic Information.

Elisabet Rodriguez Llorian,Nicola Kopac,Louloua Ashikhusein Waliji,Kennedy Borle,Nick Dragojlovic,Alison M Elliott,Larry D Lynd

Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research（2023）

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摘要

Existing evidence on the benefits of biobanks is skewed toward easily quantifiable research outputs. Measuring a comprehensive set of outputs and outcomes inspired by value frameworks is necessary to generate better evidence on the benefits of genomic data sharing.

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关键词

biobanks,genetic disease,value framework

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