Living With Hereditary Angioedema in Australia: Findings From a National Observational Study Using Short Message Service to Monitor the Burden of Disease.

Constance H Katelaris, Kathryn Boicos, Peter H Button,Philip I McCloud,Pamela K Burton,Fiona A Perram,Sherif Youssef,David Tognarini

The journal of allergy and clinical immunology. In practice（2023）

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摘要

This study was a first of its kind, real-world, prospective, observational study of Australian patients living with HAE. Despite the availability of effective on-demand therapies, HAE remains burdensome. Wider access to safe and effective prophylactic therapies is needed for patients living with HAE.

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关键词

Attack,C1-INH concentrate,HAE,Hereditary angioedema,Hospitalization,Icatibant,On-demand therapy,Productivity,Severity

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