Health and quality of life of patients with haemophilia: A national study of 124 Danish men.

Christina Schnohr,Ola Ekholm,Lone Hvitfeldt Poulsen,Lars Lehrmann,Terkel Andersen,Eva Funding,Karen Binger Holm,Jakob Bue Bjorner

Haemophilia : the official journal of the World Federation of Hemophilia（2023）

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摘要

The disease burden of haemophilia has improved so PWH resembles the general population in areas such as marriage and education. However, even for young PWH, the disease still imposes a significant burden from hemophilia arthropathy and pain in extremities and joints. Middle-aged PWH also have poorer levels of employment than same-aged peers.

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haemophilia,quality of life,questionnaire

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