Stigma experienced by ALS/PMA patients and their caregivers: a mixed-methods study.

Marion Sommers-Spijkerman,Melinda S Kavanaugh,Esther Kruitwagen-Van Reenen,Aimée Zwarts-Engelbert,Johanna M A Visser-Meily,Anita Beelen

Amyotrophic lateral sclerosis & frontotemporal degeneration（2023）

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摘要

Our findings reveal a range of perceptions and experiences underlying enacted/felt stigma among ALS/PMA patients and their caregivers that may serve as conversation topics in clinical practice. Future research may shed more light on the determinants as well as the consequences of stigmatizing experiences among patients and caregivers.

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Amyotrophic lateral sclerosis,mixed methods,quality of life,stigma

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