ACTIVLIM-Hemo: A new self-reported, unidimensional and linear measure of activity limitations in persons with haemophilia.

Sébastien Lobet,Catherine Lambert,Anthe Foubert,Valérie-Anne Chantrain,Nathalie Roussel,Mira Meeus,Ann Devos,Philip Maes,Cedric Hermans,Massimo Penta

Haemophilia : the official journal of the World Federation of Hemophilia（2023）

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摘要

The ACTIVLIM-Hemo is an easy-to-administer, valid and reliable alternative to HAL in assessing activity limitations in PwH. Its invariant scale can be used across conditions and time to compare the functional status of PwH over a wide measurement range.

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关键词

bleeding disorder, disability and health,haemophilia, International Classification of Functioning (ICF), outcome assessment, questionnaire, rash analysis, scale

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