A Survey of Research Participants' Privacy-Related Experiences and Willingness to Share Real-World Data with Researchers.

Journal of personalized medicine(2022)

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摘要
This study offers the first insights into how privacy-related experiences, adjusted for age range and education level, may shape ResearchMatch participants' willingness to share several sources of real-world data sources with precision medicine researchers. Future work should further explore these insights.
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关键词
personalized medicine,precision medicine,privacy,real-world data,real-world evidence,research
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