A caregiver's perspective on clinically relevant symptoms in behavioural variant frontotemporal dementia: tools for disease management and trial design.

Jay L P Fieldhouse, Gaby van Dijk,Freek Gillissen,Marie-Paule E van Engelen,Sterre C M de Boer,Annemiek Dols, Hendrik-Jan van der Waal,Barbara J Regeer,Everard G B Vijverberg,Yolande A L Pijnenburg

Psychogeriatrics : the official journal of the Japanese Psychogeriatric Society（2023）

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摘要

Caregiver perspectives on target symptoms in bvFTD differ according to clinical stage and patient-caregiver characteristics, with significant socio-emotional changes characterizing early stages. These findings call for more appropriate tools and symptomatic treatments, as well as a personalized approach in treatment of bvFTD and a focus on early stage interventions in clinical trial design.

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关键词

diagnosis,disease progression,frontotemporal lobar degeneration,informal caregivers,qualitative research

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