Caregiver distress: A mixed methods evaluation of the mental health burden of caring for children with bladder exstrophy.

Frontiers in pediatrics(2022)

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摘要
Complex, long-term course of care, including additional surgeries, significantly impacts caregiver distress in the LMIC setting. Screening for caregivers of children with complex congenital anomalies, like BEEC, should be an essential element of any comprehensive effort to alleviate the global burden of disease.
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关键词
bladder exstrophy-epispadias complex (BEEC),caregiver distress,low- and middle-income countries (LMIC),quality of life,stigma
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