The Burden of COVID-19 on Caregivers of Children with Suspected Genetic Conditions: A Therapeutic Odyssey

Margaret Waltz,Courtney Canter,Jeannette T. Bensen,Jonathan S. Berg,Ann Katherine M. Foreman,Tracey L. Grant,Kristen Hassmiller Lich,Angelo Navas,Julianne M. O’Daniel,Bradford C. Powell,Christine M. Rini,Brooke S. Staley,R. Jean Cadigan

Physical & Occupational Therapy In Pediatrics（2022）

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摘要

Although much has been written about the challenges of diagnostic odysseys for children and their families, this study illustrates the importance of expanding the focus of these studies to include odysseys. Because therapeutic odysseys continue regardless of whether diagnoses are made, future research should investigate how to support caregivers through children's therapies within and outside of the COVID-19 context.

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COVID-19,diagnostic odyssey,pediatric therapies,rare or undiagnosed conditions,therapeutic odyssey

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