'Sick with stress': perspectives on airport travel from persons living with dementia and their travel companions

Persons living with dementia continue to desire and need air travel. This study gives voice to the current lived experiences of persons with dementia and their caregiving travel companions using U.S. airports. Forty-eight persons living with dementia and 176 travel companions shared information about themselves and their airport experiences through a web-survey. Results identified common challenges and ways in which U.S. airports could be improved to better serve persons living with dementia and their travel companions. Anxiety, understanding signs and announcements, and getting lost or separated were primary travel concerns. Participants detailed themes of frustration with security and locating family restrooms or quiet spaces. Many are unaware of the services available to assist travelers. Among other recommendations, participants suggested staff training on hidden disabilities to improve air travel experiences. Results inform ongoing efforts to develop dementia-friendly airports and support continuing independence and quality of life. Points of interest This study surveyed the air travel experiences of persons living with dementia and their travel companions to understand how going through the airport can be made more comfortable for them. Primary concerns voiced by the participants were anxiety and frustration at security, trouble finding their way around the airport, and not enough quiet spaces or family bathrooms. Participants shared that better staff training, hidden disability badges, and more wheelchair or electric cart services could help travelers like them and other persons living with disabilities. Airport updates that reduce noise and add more family bathrooms can make airport travel better for persons living with dementia and their travel companions. This paper shows how persons living with dementia and their travel companions' could be more comfortable in public spaces like airports if we use their experiences and opinions to make improvements.