Down syndrome: Parental experiences of a postnatal diagnosis.
Journal of intellectual disabilities : JOID(2022)
摘要
This study highlighted the importance of the need for clinicians to ensure that partners are present at the time of the disclosure, that ample time is allocated and that verbal and written communications are provided to parents using less medical jargon when delivering the postnatal diagnosis of Down syndrome. These reasonable adjustments could alleviate parental anxiety at this critical juncture in their lives. Online resources and support forums were also identified as an integral support for families on discharge from the maternity centres and in the early months and years.
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关键词
Down syndrome,intellectual disability,parents,postnatal diagnosis
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