Returning raw genomic data: rights of research participants and obligations of health care professionals

Jane L Nielsen,Carolyn Johnston,Tracey O'Brien, Vanessa J Tyrrell

MEDICAL JOURNAL OF AUSTRALIA（2022）

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摘要

As the number of requests for raw genomic data increases, policies and protocols reflecting the perspectives of clinicians, patients, researchers and research participants are required

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关键词

Clinical decision-making,Delivery of healthcare,Ethics,Genetic testing,Legislation, medical,Medical records,Medicolegal,Patient rights,Sequence analysis

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