Quality of Life and Well-Being for Children and Youth With Special Health Care Needs and their Families: A Vision for the Future.

Cara L Coleman, Mia Morrison, Sarah K Perkins,Jeffrey P Brosco,Edward L Schor

Pediatrics（2022）

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摘要

The health care system must systematically measure the priorities of CYSHCN and their families. It also must incorporate data on quality of life and well-being when developing services, supports, and systems that help CYSHCN and their families to flourish rather than hindering them.

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