POSC355 Measuring the Experience of Living with Spinal Muscular Atrophy: The Role of the SMA Independence Scale

JF Vazquez,M brañas Pampillon, I Pitarch,M Lopez,J Medina, M Povedano, JA Fernandez Ramos, MC García, R Rojas Garcia,SI Pascual,I Málaga, J Eiris,M De Lemus,MG Cattinari,R Cabello,P Diaz, M Terrancle, J Maurino, P Rebollo, M Madruga

Value in Health（2022）

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摘要

The experience of living with Spinal Muscular Atrophy (SMA) has been insufficiently explored. The SMA Independence Scale (SMAIS) is a new self-reported questionnaire to assess the amount of assistance patients require to perform daily activities. The aim of the study was to assess disease impact from the patients´ perspective and analyze the psychometric characteristics of the SMAIS.

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