Participant experiences with a new online modified-Delphi approach for engaging patients and caregivers in developing clinical guidelines.

Courtney Armstrong,Sean Grant,Kathi Kinnett, Brian Denger,Ann Martin,Ian Coulter,Marika Booth,Dmitry Khodyakov

European journal for person centered healthcare（2019）

引用 5|浏览3

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摘要

The results of our study show the overall participant satisfaction with a novel, scalable, online approach to engaging patients and caregivers in CPG development, which allows them to share their perspectives and lived experiences using a rigorous, systematic and iterative way that is similar to how clinicians provide their input.

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关键词

Duchenne Muscular Dystrophy,ExpertLens™,Modified-Delphi method,RAND/PPMD Patient-Centeredness Method,guideline development,lived experience of illness,online engagement,patient engagement,patient/caregiver perspectives,person-centered healthcare

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