Community dwelling life- and health issues among persons living with chronic spinal cord injury in North Macedonia

Study design Cross-sectional study. Objectives The purpose was to reveal late health consequences and life issues after a traumatic spinal cord injury (tSCI) in North Macedonia (NM). Setting Community dwelling adults with tSCI in NM. Methods Persons that sustained tSCI in 1999–2005 were selected, physical examined and a questionnaire was administered. Descriptive statistics were conducted. Results From 203 eligible persons, 40 agreed to participate. Mean (range) age at time of injury was 36 (27–75) years and time since injury ranged 9–20 years. Around seventy percent reported current health problems, of which pain and spasm (>60%) were most prevalent, followed by urinary tract infections and pressure injuries. About 30% had never been to a medical specialist and ≈70% had only once been to physiotherapy after discharge from the primary inpatient period. Only one participant had a fully adjusted home for a person with a disability. Those with most severe tSCI (American Spinal Injury Association Impairment Scale (AIS) A, B, and C) seldom left their homes. About 50% were retired and/or unemployed, 50% were working. Conclusion This is the first study describing community-dwelling persons with a tSCI in NM. Our study revealed that persons with tSCI reported health issues mostly related to pain, spasms, urinary tract infections and pressure injuries. They lacked follow-ups, experienced physical barriers and poor inclusion in the society, and lacked financial support. Therefore, they were often socially isolated and fully dependent on their families. NM is in need of structured rehabilitation programs and better adaption for persons with reduced mobility.