The unmet supportive care needs, quality of life, and care experiences of patients with functioning and non-functioning Neuroendocrine tumours (NETs) at early diagnosis

•Both functioning and non-functioning NET patients report reduced quality of life to the general population.•NET patients report a moderate-to high need for information about their disease, treatment options or disease management.•NET patients report negative experiences in their ability to understand their disease as well as access useful information resources.•There is a need to improve the current provision of information for people with NETs.