Assessing the needs of caregivers of children and adolescents with fetal alcohol spectrum disorders: Results from a survey among families and professionals in Germany

Tobias Weinmann,Judith E Moder,Lisa K Ordenewitz, Julia Schlueter,Jessica Jung,Katharina Kerber,Renate M Giese, Franziska Kusser,Iris Hannibal,Florian Heinen,Mirjam N Landgraf

European Journal of Paediatric Neurology（2021）

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摘要

•Caring for children with FASD constitutes a great challenge for parents.•There is very little research on the needs of families with children with FASD.•Caregivers and professionals rated the fulfilment of needs very poorly in Germany.•There is urgent need for action to improve support for caregivers of FASD patients.

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关键词

Fetal alcohol syndrome,FASD,Caregivers,Needs assessment,Health services research

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