The Future Is Now For Transforming Outcomes Nationally: The Fontan Outcomes Network

The Fontan Outcomes Network aims to dramatically improve longevity and quality of life for people living with Fontan circulation. This mission will be achieved by improving physical health, resilience and emotional health, and neurodevelopment for these individuals and their families. Co-produced by patients, parents, clinicians, and researchers, this national initiative has been strategically designed and built on a scalable learning health network platform to address key gaps in the field, support discovery, and accelerate improvements in outcomes.