Abstracts of 11th C1-inhibitor Deficiency & Angioedema Workshop

s of 11th C1-inhibitor Deficiency & Angioedema Workshop Hungary, 23–26 May 2019 Published: 13 August 2019 © The Author(s) 2019. This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/ publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. I0 Dear Colleagues, Between 23 and 26 May 2019, the international scientific conference on angioedemas—conditions belonging to the group of orphan diseases and resulting in a life-threatening condition—will be held on the eleventh occasion in Budapest (2019.haenetworkshop.hu). This year, the word ‘angioedema’ has been added to the title of this event (organised every two years in Hungary starting from 1999), which now reads “11th C1-INH Deficiency & Angioedema Workshop”. This designation better reflects the agenda of the 4-day long conference, because it has become a forum for discussing topics also on other bradykinin-mediated hereditary and acquired angioedemas, in addition to C1-inhibitor deficiency. Based on the 82 submitted abstracts, the programme includes 36 oral and 46 poster presentations. These will be supplemented by the lectures delivered by Patricia Pozo-Rosich (Barcelona, Spain) on the relationship between migraine and angioedema, as well as by Michael Kirschfink (Heidelberg, Germany) on the standardization of the laboratory methods applied for complement testing. Furthermore, Avner Reshef (Ashkelon, Israel) will summarize the prodromal symptoms of angioedema. By tradition, the agenda of the conference comprises consensus meetings and roundtable discussions intended to facilitate the adoption of international guidelines. This year, Anastasios E. Germenis will moderate the roundtable session “International consensus on the use of genetics in the management of hereditary angioedema”, whereas Teresa Caballero will lead the discussion on “International consensus on the gynecologic and obstetric management of female patients with hereditary angioedema—updates”. Further, the ‘HAE Global Registry’ Work Group (established to develop an international database on hereditary angioedema), led by Marco Cicardi, will hold its meeting here. The geographical distribution and professional background of the participants are variegated. Approx. 330 delegates have registered from all over the world, from 39 countries in total. Researchers, medical professionals, drug development specialists, members of patients’ organisations, and nurses will all be represented in the audience, which has become an active and creative community over the past two decades. The delegates of the International Hereditary Angioedema Nursing Organization will hold a consultative meeting on improving the stateof-the-art care of angioedema patients in the ‘Nurse Meeting’ session of the Workshop, under the moderation by Iris Leibovich-Nassi. Generous support by CSL Behring, Pharming, Biocryst, Kalvista and Sobi made it possible to organize a high level scientific conference. This educational activity is supported by an independent medical educational grant from Shire (Takeda). The support referred to above has again enabled us to present the “For HAE Patients” award, as well as to give the “Grant for Young Investigators” to four presenters under the age of 35 years. In 2019, the ‘For HAE Patients’ award goes to Teresa Caballero (Madrid, Spain), who will deliver a presentation in the festive session of the first conference day, and her accomplishments will be reviewed by Henriette Farkas (Budapest, Hungary) beforehand. The closing feature of the Workshop will be the presentation of the ‘Grant for Young Investigators’ to the four winners (elected by a 7-member jury) by Peter J. Späth, Chair of the Jury. Finally, Allen Kaplan will summarize for the audience all the topics and findings discussed at this Workshop. The programme and the submitted abstracts including those by the invited speakers will be published again in the greatly esteemed Allergy, Asthma, & Clinical Immunology, in order to make them available to an even broader range of professionals interested in this subject. Henriette Farkas and Lilian Varga Chairs of 11th C1-inhibitor Deficiency & Angioedema Workshop