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Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for Immunodeficiencies Registry

Raphael Scheible,Dennis Kadioglu,Stephan Ehl,Marco Blum,Martin Boeker,Michael Folz,Bodo Grimbacher,Jens Gobel,Christoph Klein,Alexandra Nieters,Stephan Rusch,Gerhard Kindle,Holger Storf

JMIR Medical Informatics（2020）

Cited 3|Views21
Key words
registry interoperability,collaboration in research,data findability,registry software
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