Strategies to engage lost to follow-up patients with phenylketonuria in the United States: Best practice recommendations.

Jennifer Beazer, Jane Breck, Caroline Eggerding,Patricia Gordon, Stephanie Hacker, Amie Thompson

Molecular Genetics and Metabolism Reports（2020）

引用 16|浏览0

暂无评分

摘要

We strongly advocate the importance of engaging LTFU patients with PKU and encourage implementation of our best practice recommendations. Although it takes time and effort to engage LTFU patients, we believe that clinics are capable of supporting this significant patient group.

查看译文

关键词

Patient care management,Phenylalanine hydroxylase deficiency,Phenylketonuria

AI 理解论文

溯源树

样例

生成溯源树，研究论文发展脉络

Chat Paper

正在生成论文摘要