Participation in ThrillSeeking Activities for Hypertrophic Cardiomyopathy Patients

Introduction: Hypertrophic Cardiomyopathy (HCM) is the most common inherited cardiomyopathy and an important cause of sudden cardiac death in young. Previous work suggests that adrenergic stimulation during thrill-seeking activities may be dangerous for cardiac patients. Based on this and the Bethesda guidelines many physicians advise against participation. Hypothesis: We hypothesized that many patients would continue to participate in these activities and we sought to examine their characteristics and outcomes. Methods: Patient advocacy organizations (HCMA), social media outlets and collaborating centers invited HCM patients to complete an anonymous online survey, providing information about participation in thrill-seeking activities (Rollercoaster riding, Jet skiing, Rafting, Bungee jumping, Rappelling, Paragliding, Kayaking/canoeing, Motor racing, Snowboarding, BASE jumping, Skydiving) and associated symptoms. Results: Out of 633 responders, (age: 51.3+-14.4 years, 351 F, 272 M), 556 had engaged in thr...