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Clinical management, psychosocial characteristics, and quality of life in patients with homozygous familial hypercholesterolemia undergoing LDL-apheresis in Turkey: Results of a nationwide survey (A-HIT1 registry).

Meral Kayikcioglu,Ozlem Kuman-Tunçel,Sebnem Pirildar,Mehmet Yílmaz,Leylagul Kaynar,Melih Aktan,Rana Berru Durmuş,Cumali Gökçe,Ahmet Temizhan,Osman Ilhami Özcebe,Tulay Karaagac Akyol, Harika Okutan,Saim Sağ,Ozen Oz Gul,Zafer Salcioglu,Mustafa Yenercag, Bulet Behlul Altunkeser,Irfan Kuku,Hamiyet Yílmaz Yasar,Erdal Kurtoğlu, Melis Demir,Sinan Demircioğlu,Zafer Pekkolay,Osman Ílhan,Lale Tokgozoglu

Journal of Clinical Lipidology（2019）

引用 22|浏览49
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摘要
•HoFH therapy is highly variable.•Patient QoL is negatively affected by HoFH and its treatment.•Prompt diagnosis and treatment are important for patient well-being.
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关键词
Homozygous familial hypercholesterolemia,LDL-Apheresis,Quality of life,Psychosocial impact,Turkey
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