A comparative study of care practices for young boys with Duchenne muscular dystrophy between Japan and European countries: Implications of early diagnosis.

•Care practice in DMD boys after early diagnosis in Japan and Europe was analysed.•Frequently early diagnosis was achieved by creatine kinase and genetic testing.•Early diagnosis at presymptomatic stages often left DMD families dissatisfied.•Japan cohort less satisfied with genetic counselling information and overall care.