Consensus clinical management guideline for pantothenate kinase-associated neurodegeneration (PKAN).

•Clinical experts have developed consensus opinions about the management of PKAN that can serve as a guideline for care.•Guidance is provided for diagnosis and management, treatment and surveillance, including for status dystonicus and other emergency care, and education and psychosocial support.•This guideline is a living document that will require ongoing review and revision.