Is it worth it, or possible, to measure what matters to patients with epilepsy and their caregivers?

Maria Grazia Celani,Teresa Anna Cantisani,Angelo Bignamini,Sara Macone,Rossella Papetti, Luisa Baiocco

Epilepsy & Behavior（2018）

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摘要

•Population of epilepsy patients and carers express emotions and needs from first diagnosis to chronic care.•From these data new outcome measures could take off in patient-centered research.•Patient's and carers' emotions and needs represent a new basis for discussion in health organization.

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关键词

Epilepsy,Evidence-based neurology,Quality of life,Psychology,Outcome measures

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